What’s the word on the beach, you ask?

Oh, how I miss my blog!  As I sit here at my parents’ dining room table, I have one baby not sleeping and starting to fuss in her playpen, another being fed with dual effort of Dad and Grandpa, and Grandma trying to get dinner going.  What am I doing?  Well, I am trying to cluster-pump to try get ahead of the game, as each 3 hour period, I try to fit in feeds to little Alex, as well as pump enough for Hailey’s feeds.  I have been playing catch-up ever since they used all my frozen stores at CHEO for her overnight feeds.  It’s stressful, since I absolutely HAVE to pump a minimum of a certain amount each 3 hours, and the stress has sometimes limited my supply (not to mention lack of sleep, lack of food and not always hydrating enough).

I will say this about that…breastfeeding is by far the hardest thing I have ever done.  Bar none.  It’s worth it, but boy…with twins, it’s a crazy, crazy never-ending job.

On Friday, December 3, exactly one month after the twins’ birth, Hailey was released from the CHEO hospital. It was a long day, as the night before was a bad night for babies in the Ottawa area, and what was a relatively calm NICU became over-booked with new admissions.  This meant that morning ’rounds’, where all the amazing medical staff (dieticians, resperatory technicians, nurses, pediatricians, neonatologists, etc.) review each case and discuss the treatment plans for the next 24 hours took an incredibly long time.  It also meant that the pediatrician who had to go through our Hailey’s files for her release could not get to it until late in the day.  It was a long, chaotic day.  In fact…a long chaotic month, which I do believe has heavily affected Alex. More on Alex to come.

So yes.  Hailey was released, and by all accounts her recovery was remarkable.  The previous post that outlined her surgery reveals how extensive the abdominal reconfiguration was, and the fact that our only challenge in the end was to get her to gain weight through feeds is incredible.  One of these days I will chart the timeline and put it down to see the whole picture, but it is all testament to the incredible work of Hailey herself, but the incredible CHEO staff.  On our departure, we left behind a big gift basket filled with sweets and chocolates to make their shifts a bit better over the next few days, but nothing can truly compensate for what they did to save my little one’s life.  Such an incredible team of selfless and loving people I have never met.  What they do is so hard, yet it makes such a massive difference.

Now, for the first time ever, we are back at Grandma and Grandpa’s house, and I haven’t had to go ANYWHERE for the last two days.  It feels GREAT to just be here, in the moment.  Later this week we begin the move back to our home in Kanata and by the weekend, we will finally be in our home.  It will still be really hard, but it will be normal.  Gawd I love the sound of that. 

And who knows?  Maybe I will be able to blog once in a blue moon, if all the stars align and I have a free moment.

Thanks to everyone for all their support, love, prayers and congratulations.  What a ride!

Here are a few shots from our last day:

New socks for both Hailey and for Alex (outfits came later, but ultimately, Hailey ended up in a fresh sleeper.  There was, uh, an incident, let’s call it, with Grandpa on the scale which we were using as a change table…) Can you tell who is who?

Dylan the dragon and some friends all packed up and ready to go.

Grandma in the isolation room (our ‘hotel’ room over the final three days where this Mom was trying to ensure Hailey got enough nourishment to grow and gain weight in order to go home).

Mommy holding Hailey just before her release.

Hailey loaded into her car seat for her first trip out of the hospital – the air is good there, but fresh is best!!!

Daddy ready to roll with both his little girls. 

What all parents of CHEO babies pray for…

And when we got home, Mommy gave Hailey her first bath, then wrapped her in her duckie blanket.  The heart melts…

Ahhh….

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3 thoughts on “What’s the word on the beach, you ask?

  1. Hi I was just going over some of the cdh blogs that I follow and noticed I had not hit yours in some time. I am so happy your baby is alright. I know you still have a long road of worry ahead but so happy your little ones are at home.

    If you have any questions about the after care of cdh children you can find my email address in the blog on the right hand side. God is good!

    http://avaslifewithcdh.blogspot.com

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